Making My Brain My Bitch

This is the second in a series about my goals for 2018. The fact that I’ve gotten to a second entry is likely as surprising to you as it is to me. You can find the full list of posts I’ve written on this theme here.

2. Get my epilepsy in check.

You don’t have to have read much of this blog to know that my brain is a bloody mess. Epilepsy, depression, just being generally scattered and forgetful: it’s not a particularly ordered thing to live in.

Since I started tracking my seizure patterns again in August 2017, I have had 15 seizures, including two this morning. That doesn’t count the number of times I have lost feeling or the ability to move my limbs or extremities for no apparent reason.

Something needed/needs to change.

This year, I’m going to try to get better sleep. I’m going to be as compliant as humanly possible with my medication through the use of Webster packs. I am taking notes on every seizure, and fighting for extra tests just in case. I’ve been able to negotiate a part-time work arrangement so that I have time to rest mid-week and I can reduce my stress levels.

The effect of these steps and sacrifices remain to be seen. I have a neurologist appointment and ambulatory EEG in February which will hopefully offer some more answers.

Until then, I’m just here at home counting milestones – seven days, thirty days, three months – hoping that it will all pay off sooner rather than later, and I can go back to living a life that I feel comfortable in.

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